Medical overview

Family stories



Medical advisory board

Support Group Publications

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Fall 2002: Medical Overview, Family News: Misa & Kimberly, NORD Conference, Improving Walking

Winter 2003: Gonadal Function in MSS, Family News: Lau family, Finger and Hand Strength
Summer 2003: ASHG meeting, update on Sylvain, full inclusion, sports and recreation, medical update
Fall 2003: Cataracts in MSS, First MSS family meeting, New family from Brazil

Winter 2004: American Society of Human Genetics (ASHG) Meeting, poster and handout
Fall 2004: Update on Kimberly, Educational Hints, Long-Term Planning

Winter 2005: Support Group and Research Accomplishments: The Last Four Years
Fall 2005: MSS Gene Identified!  Misa Graduates

Winter 2006: Sil1 Gene Update, Introducing the MSS listserv, Call for Growth Profiles
Summer 2006: Woozy Mutant Mouse, Genetics Update, ACMG Conference, Annual Review of Accomplishments
Fall 2006: Introducing the Miller Family, Questions for the Geneticist, ASHG meeting, Kimberly in Europe

Winter 2007: MSS: A Protein Folding Disease, Improving Mobility, Growth Profiles
Spring 2007: Introducing Bronnie, Genetics Update, Genetic Non-Discrimination Legislation
2007: Welcome to Dominic and Daniel, MSS Support Group - Who Are We?
Fall 2007: October 2007 ASHG Conference, Cool2Care

Fall 2008: Welcome to Akina and Niina, Conference Papers, Technical Publications

Newsletters are Back!

October 2014:  New members, Family Updates, RareConnect, MSS Research, Fun Activities, Photo Contest

December 2014: Family news, MSS registry coming soon,  Research, Informal survey

July 2015:  MSS Registry Launched, Family Updates, New Research