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Support Group Publications
Brochures are available. E-mail us with your name,
address, and the number of brochures you would like to receive.
Preview brochure
Access newsletters
by clicking on issue (Download Adobe
Acrobat).
Fall 2002: Medical
Overview, Family News: Misa & Kimberly, NORD
Conference, Improving Walking
Winter 2003: Gonadal Function in MSS, Family News: Lau family, Finger
and Hand Strength
Summer 2003: ASHG
meeting, update on Sylvain, full inclusion, sports and recreation, medical
update
Fall 2003: Cataracts in
MSS, First MSS family meeting, New family from Brazil
Winter 2004: American
Society of Human Genetics (ASHG) Meeting, poster and handout
Fall 2004: Update on
Kimberly, Educational Hints, Long-Term Planning
Winter 2005: Support
Group and Research Accomplishments: The Last Four Years
Fall 2005: MSS Gene
Identified! Misa Graduates
Winter 2006: Sil1
Gene Update, Introducing the MSS listserv, Call for Growth Profiles
Summer 2006: Woozy
Mutant Mouse, Genetics Update, ACMG Conference, Annual Review of
Accomplishments
Fall 2006: Introducing
the Miller Family, Questions for the Geneticist, ASHG meeting, Kimberly in
Europe
Winter 2007: MSS: A
Protein Folding Disease, Improving Mobility, Growth Profiles
Spring 2007:
Introducing Bronnie, Genetics Update, Genetic
Non-Discrimination Legislation
Summer 2007: Welcome to Dominic and Daniel, MSS Support Group -
Who Are We?
Fall
2007: October 2007 ASHG Conference, Cool2Care
Fall 2008: Welcome to Akina and Niina, Conference
Papers, Technical Publications
Newsletters are Back!
October 2014: New members, Family Updates, RareConnect,
MSS Research, Fun Activities, Photo Contest
December 2014: Family news, MSS registry
coming soon, Research, Informal survey
July 2015: MSS Registry Launched, Family Updates, New Research
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