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MSS Registry
The MSS support group is pleased to announce a partnership with The Coordination of
Rare Diseases at Sanford
(CoRDS) for the creation of an MSS
registry. CoRDS is a national rare disease registry designed to accelerate
research into rare conditions. The program collects and stores basic contact
and clinical information on individuals of any age who
have been diagnosed with a rare disease. By enrolling in CoRDS,
participants who qualify will be notified of any opportunities to participate
in clinical trials as well as other research opportunities. CoRDs has partnered with nearly 60 rare-disease organizations to accelerate participation in the global
registry and increase awareness of rare-disease
research. There is no cost to
families, the MSS support group, or participating researchers.
Learn
more about CoRDS
MSS Registry FAQs
Begin
the registration process
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