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MSS Registry

The MSS support group is pleased to announce a partnership with The Coordination of Rare Diseases at Sanford (CoRDS) for the creation of an MSS registry.  CoRDS is a national rare disease registry designed to accelerate research into rare conditions. The program collects and stores basic contact and clinical information on individuals of any age who have been diagnosed with a rare disease.  By enrolling in CoRDS, participants who qualify will be notified of any opportunities to participate in clinical trials as well as other research opportunities.  CoRDs has partnered with nearly 60 rare-disease organizations to accelerate participation in the global registry and increase awareness of rare-disease research.  There is no cost to families, the MSS support group, or participating researchers.

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MSS Registry FAQs

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